24th May 2010: NEW STEM CELL RESEARCH PROGRAMME 7th May 2010: IMPORTANT RESEARCH DEVELOPMENT 17th Feb 2010: CAMPAIGN FOR A NATIONAL STRATEGY FOR MND SOME GREAT NEWS! RECENT BRANCH NEWSLETTERS The Newsletters are in .pdf format. If you haven't already got it on your computer, you can - Get Adobe Acrobat Reader Here (Free!)
The MND Association has announced that it is funding a £800,000 three year stem cell research programme. Involving four of the world's leading authorities, this programme should increase understanding of why specific nerves die in a person with MND, and thus will advance progress towards the ultimate goal of developing a treatment.
To find out more, please click
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Chicago researchers have found clumps of the ‘FUS’ protein in motor neurones both of people with familial MND, AND of people with sporadic MND.
Dr Brian Dickie, our director of research development says that:
"This research adds weight to the opinion of many scientists that we may at last be homing in on some of the key pivotal disease processes that are occurring in MND.
It is looking like TDP-43 and FUS proteins represent a ‘smoking gun’
in most forms of the disease."
To read more, please see our 'News in research' article
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Today, a campagn was launched to improve the quality of care for MND sufferers. Spearheading it is Chris Woodhead (former Chief Inspector of Schools), who was diagnosed with MND in 2006. At the moment, standards of care vary widely across the country, and end-of-life care in particular needs to be improved. Please have a look at the press release
and check out the campaign site
If you agree with the aims of the campaign, please sign the petition and write to your MP,
the Minister and his shadows. Thanks!
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A major new £4.6 million research initiative involving leading MND scientists has been announced by the Wellcome Trust and the Medical Research Council.
For more information, click
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